NOAH: Connecting the Albinism Community Video
NOAH (National Organization of Albinism and Hypopigmentation).
NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects.
NOAH’s objectives are:
*Provides information and support regarding albinism and related conditions.
*Promotes public and professional education about these conditions
*Encourages research and funding that will lead to improved diagnosis and management of albinism.
*Provides networking for those with special interests related to albinism such as minority groups and Hermansky-Pudlak Syndrome.
NOAH provides information and support for its members by:
*Sponsoring workshops and conferences on albinism.
*Publishing a quarterly magazine, Albinism InSight
*Publishing information bulletins on topics specific to living with albinism.
*Provides a network of local chapters and contact people.
*Providing a web site that has information about albinism and bulletin boards where people can share experiences.
*Spreads knowledge about albinism and works to improve attitudes towards those with the condition through television appearances, newspaper articles, information packets for libraries, and outreach to professionals.
*Networks with support groups for people with albinism in other countries, and promotes development of albinism support groups throughout the world through participation in the Albinism World Alliance.
1 in 20,000 people in the US has some type of albinism.