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NOAH: Connecting the Albinism Community Video

NOAH (National Organization of Albinism and Hypopigmentation).

NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. NOAH is operated by its members on a volunteer basis and is funded primarily by dues and contributions of its members. NOAH has also received grants from foundations and organizations for specific projects.

NOAH’s objectives are:

*Provides information and support regarding albinism and related conditions.

*Promotes public and professional education about these conditions

*Encourages research and funding that will lead to improved diagnosis and management of albinism.

*Provides networking for those with special interests related to albinism such as minority groups and Hermansky-Pudlak Syndrome.

NOAH provides information and support for its members by:

*Sponsoring workshops and conferences on albinism.

*Publishing a quarterly magazine, Albinism InSight

*Publishing information bulletins on topics specific to living with albinism.

*Provides a network of local chapters and contact people.

*Providing a web site that has information about albinism and bulletin boards where people can share experiences.

*Spreads knowledge about albinism and works to improve attitudes towards those with the condition through television appearances, newspaper articles, information packets for libraries, and outreach to professionals.

*Networks with support groups for people with albinism in other countries, and promotes development of albinism support groups throughout the world through participation in the Albinism World Alliance.

1 in 20,000 people in the US has some type of albinism.

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